Financial and Life Planning Resource Directory

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Body: Death and dying
Consumers/clients
	Bercovitz, Anita, et al, End-of-Life Care in Nursing Homes: 2004 National Nursing Home Survey
		U.S. National Center for Health Statistics, October 8, 2008, Free http://www.cdc.gov/nchs/data/nhsr/nhsr009.pdf This study examines the charateristics of the patients and the services involved when end-of-life care is provided.
	Bern-King, Mercedes, "Framework for Categorizing Social Interactions Related to End-of-Life Care in Nursing Homes, A", Gerontologist, August 2009 (Vol. 49, No. 4)
		http://gerontologist.oxfordjournals.org/cgi/content/abstract/49/4/495 Bern-King sugests five categories to identify the stance toward the possibility of dying: dying allowed, dying contested, mixed message dying, not dying, and not enough information.
	Coping With End-of-Life Decisions
		Pew Research Center, August 20, 2009, Free http://pewresearch.org/pubs/1320/opinion-end-of-life-care-right-to-die-living-will Poll results concerning the right to die, providing written instructions on end-of-life medical treatment, and discussing these issues with adult children.
	DeWall, C. Nathan, and Baumeister Roy F. , "From Terror to Joy: Automatic Tuning to Positive Affective Information Following Mortality Salience", Psychological Science, 2007 (Vol. 18, No. 11)
		http://www.psychologicalscience.org/journals/index.cfm?journal=ps&content=ps/18_11&CFID=15799374&CFTOKEN=7c012e5b39deab9d-26DA9398-E0E9-1F35-AF This study of awareness of death suggests that conscious awareness of one’s own mortality may be compensated for in the brain by the natural generation of cheerier thoughts.
	Honoring Final Wishes: How to Respect Americans' Choices at the End of Life (U.S. Senate Special Committee on Aging), September 24, 2008
		http://aging.senate.gov/hearing_detail.cfm?id=303486, Free Transcripts and webcast of statements and testimony.
	Kramer, Betty J., et al, "Predictors of Family Conflict at the End of Life: The Experience of Spouses and Adult Children of Persons with Lung Cancer", Gerontologist, April 2010 (Vol. 50, No. 2)
		http://gerontologist.oxfordjournals.org/content/50/2/215.abstract The authors measured the causes of family conflict in end-of-life situations, identifying the main culprits as prior family conflict, race, communication constraints, and family members asserting control.
	McCarthy, Ellen P., et al, "Advance Care Planning and Health Care Preferences of Community-Dwelling Elders: The Framingham Heart Study", Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 2008 (Vol. 63)
		http://biomed.gerontologyjournals.org/cgi/content/abstract/63/9/951 McCarthy et al use the Framingham Heart Study group to investigate attitudes toward and preparations for end-of-life problems. Their study notes that many are willing to endure specific life-prolonging interventions and distressing health states to avoid death.
	Phillips, Linda R., and Reedfound, Pamela G., "End-of-Life Caregiver’s Perspectives on their Role: Generative Caregiving", Gerontologist, April 2010 (Vol. 50, No. 2)
		http://gerontologist.oxfordjournals.org/content/50/2/204.abstract Phillips and Reedfound describe several models of caregiving at the end of life, centering on “generative caregiving,” which is situated in the present (to enhance the present quality of life) and in the past and future (to create a legacy that honors the elder and the elder–caregiver relationship).
	Philpson, Tomas J., Terminal Care and The Value of Life Near Its End
		National Bureau of Economic Research Working Papers, January 2010, $5.00 http://www.nber.org/papers/w15649 The authors argue that existing analysis of the value of life often undervalues life near its end, and that several factors drive up this value, including the low opportunity cost of medical spending near death, and the value of hope (including living long enough to benefit from new innovations).
	Rich, Shayna E., "Concordance of Family and Staff Member Reports About End of Life in Assisted Living and Nursing Homes", Gerontologist, February 2010 (Vol. 50, No. 1)
		http://gerontologist.oxfordjournals.org/content/50/1/112.abstract The authors point out that family and staff perspectives about end-of-life experiences may differ substantially, but efforts can be made to improve family-staff communication and interaction for joint decision making.
	Schoepfer, Tracy A., et al, "Myriad Strategies for Seeking Control in the Dying Process, The", Gerontologist, December 2009 (Vol. 49, No. 6)
		http://gerontologist.oxfordjournals.org/cgi/content/abstract/49/6/755 The authors investigated the importance of terminally ill elders’ having opportunities to exercise control in their dying process. Over half of the respondents wanted more control; however, they felt their illness prevented it.
	Sloane, Philip D., et al, "Dying with Dementia in Long-Term Care", Gerontologist, December 2008 (Vol. 48)
		http://gerontologist.gerontologyjournals.org/cgi/content/abstract/48/6/741 The results of this study suggest that the overall quality of care for persons dying with dementia in long-term-care settings may not differ markedly from that provided to persons who are cognitively intact.
	Wright, Stuart, Medicare Hospice Care: Services Provided to Benefciaries Residing in Nursing Facilities
		September 2009 http://www.oig.hhs.gov/oei/reports/oei-02-06-00223.pdf Memorandum report on the kinds and amounts of hospice services provided to Medicare beneficiaries in nursing facilities in 2006.